Special Sessions and Tutorials - AIPR 2020
Tutorial Biographies and Abstracts (where available)
Time: October 15th from 2pm - 3:30pm EDT (in parallel with Special Session "Future of Healthcare Policy and Regulation in the Digital Age")
Tutorial Abstract: The proposed IEEE AIPR tutorial will include a 90 minute professional development course on approaches for multi-modal synthetic media detection. The course will provide the opportunity for participants to build a deep learning pipeline to include data pre-processing, neural network design, training methodology and algorithm benchmarking. Participants will be working in the Python programming language, and will be using open source modules including OpenCV, SciKit-learn, Pandas, and the PyTorch deep learning framework. This tutorial will cover some basic concepts of data engineering, data science, machine learning and deep learning. Participants will gain insights into issues specific to these technologies via interactive exercises as they relate to synthetic media detection with a specific case study applied to the Facebook Deepfake Detection Challenge.
Tutorial Presenter Bios:
Zigfried Hampel-Arias is a Data Scientist at IQT Labs. Zig’s research interests include generative modeling, quantum computing and contributing to the open source community as an author and reviewer. Prior to joining IQT Labs, Zig spent a decade as an astrophysicist, traveling around the Americas to work on remote, high-altitude experiments. In his spare time, Zig enjoys exploring the desert, kayaking on northern lakes, and learning new languages on Duolingo.
Michael Lomnitz is a Senior Data Scientist at IQT Labs, focusing on applied research to help the Intelligence Community better understand technology challenges. He has worked on a series of projects applying deep learning for tasks in computer vision, automatic speech recognition, speaker verification, image compression and encryption. Prior to his career as a researcher in A.I., Michael studied the big bang as an experimental nuclear physicist at the Relativistic Heavy Ion Collider in Long Island NY.
Time: October 15th from 3:30pm – 5:00pm EDT
The proposed IEEE AIPR special session will include a 90-minute agenda that provides for expert speakers and a panel discussion. The special session will allow participants to focus on healthcare issues, privacy, current regulation and policy, and the system's future to protect and utilize health data. The topics covered in the session include blockchain for data security in healthcare and resolving the disputes. Participants will gain insights into issues related to the impact of health data privacy in the world around healthcare, including rare diseases, databases, risks/consequences of health data used in social media, policy, data ownership, and HIPAA compliance.
Consultant/NWU Pritzker MSL Law Student
Bridge the Gap – SYNGAP Education and Research Foundation
In November of 2012, Monica's twin son, Beckett, was the first to be diagnosed at Texas Children's Genetics Clinic with the gene mutation SYNGAP1 (6p21.3). When Beckett was 4 months old, she noticed he was not meeting the same milestones as his twin sister. Monica then began a journey to find answers to help her son. She started to blog about his progress and this led to building a community of parents and caregivers that are now a strong support group. She is the Founder and President/CEO of Bridge the Gap – SYNGAP Education and Research Foundation. It is her passion to help support these families by raising awareness and creating a strong foundation that will accelerate a path to better therapies.
She retired in 2016 after 23 years in education teaching secondary science. Her new focus is on building the programs and mission of Bridge the Gap – SYNGAP Education and Research Foundation. She is the Primary Investigator on the SYNGAP1 (MRD5) Registry and Natural History Study. She is a life member of the Worldwide Association of Female Professionals and a member of the first class of 2017 Illumina Ambassadors established in the United States. In addition to leading the foundation, she is an author, public speaker, consultant on rare disease business strategies and advocates for rare disease legislation at both the federal and state levels. Several of her authored scientific publications include Nature Neuroscience, The Journal of Neurodevelopmental Disorders, and The Journal of Pediatrics. She has authored a book about her son Beckett’s diagnostic journey called “Slow Moving Stream - My Special Boy”. She is a graduate from East Texas Baptist University with a Bachelor's of Science in Biology/Psychology (1991) and Secondary Certification in Education (1995). She will be attending Northwestern University Pritzker School of Law in the Fall of 2020 to earn her Masters in Science Law. She has five beautiful children, Haleigh (28), Taylor, USMC (25), Sawyer (23), and the twins Beckett & Pyper (12). She was a Global Genes 2015 & 2016 RARE Champion in Advocacy Award nominee for her work in the rare disease community and Wego Health Awards Nominee for years 2015, 2017, 2018, & 2019. 2020 Global Shakers Rare Disease Champion.
Candace Lerman, Esq.
Lerman Law Firm – Lawyer of Counsel
Candace Lerman, Esq., is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University. Candace researched and repurposed a drug to put her rare blood disorder into remission twice! Inspired by her struggle of living with Immune Thrombocytopenia, she launched the ITP Patient Driven Research Initiative, which works with multiple stakeholders to improve treatments for the ITP community. She works closely with members of Congress on federal healthcare policy and can often be found on Capitol Hill.
Candace is Of Counsel to the Lerman Law Firm, assisting clients in healthcare, compliance, and corporate law. Besides practicing law, Candace consults on projects for pharmaceutical companies and non-profit organizations on topics ranging from patient registries, natural history studies, clinical trial design, patient engagement, Real World Evidence, and patient assistance programs. Coming from a diverse background as both an attorney and patient, she provides unique insights while breaking down the silos that plague drug development.
Title: Co-Founder, The Light Collective
Andrea Downing is a BRCA Community Data Organizer and an ePatient security researcher. In 2018, Andrea discovered a security vulnerability which affected the privacy and safety of all closed groups on Facebook and launched a congressional inquiry.
Michael Mittelman, MBA
Cybersecurity, Digital Health Executive
Michael Mittelman works in healthcare access, and patient and family inclusion with a special focus on cybersecurity, data governance, patient data sharing, and patient privacy. He leverages his own 30 plus years of lived experience as a rare disease patient and 3 time kidney transplant recipient. He has formal training in human behavior, healthcare management, human-centered design, and cybersecurity. He has not only been the CEO of a digital health company, but he has served as the Patient Editor at The BMJ, a DoD Consumer Reviewer, a Stanford MedX e-Patient Scholar, and Chairman of The American Living Organ Donor Fund. He is also a PCORI Ambassador and a special advisor to the UNOS Board of Directors.